Annalisa Scopinaro has been active in the field of rare diseases since the early 2000s. She has worked with UNIAMO since 2009 and is currently its President. An ePAGs Representative in ERN Ithaca, she participates in national and regional institutional boards and in the Scientific Committee of the Raramente newsletter. She writes articles and technical documents and collaborates with FAVO in the activities of the Parliamentary Intergroup on Rare Diseases and Oncology, established in the XIX legislature.