Stefano Benvenuti is Head of Public Affairs and Market Access at Fondazione Telethon (Italy) since 2021. He is vice-chair of the funders constituent committee of the International Rare Diseases Research Consortium (IRDiRC) and he is member of the Italian National Committee on Rare Disease.

Within his role in the EU funded project Join4ATMP (https://www.join4atmp.eu/) he is currently working on challenges and potential solutions for faster, fairer and more sustainable access to ATMPs in Europe.